What is Next?????

The title says it all. What is next?

Liz and I ask that daily. We ask what is going to happen next to throw a big cog in our wheels. It seems that something comes up everyday. It can be small, or it can be big. Lately they have all been pretty big.

One of the biggest is that Liz's HAE treatment is at a stand still. She has become allergic to 2 of the main medications that were helping her.  She is on a new medication to help control her attacks. But this only for a short while. She can not be on it long term without serious adverse affects on her.

So we are taking baby steps day by day. She can not do much. She feels like a shell of her former self. She wants to be active, but somedays she can't even get out of bed or move that much because of the immense pain she is in. She is such a valiant fighter. She puts on a strong face and pushes through the difficulties that would make others give up.

Liz is going to be going to the Mayo Clinic sometime this fall. Her HAE Specialist referred her there to have some genetic testing done between Liz and McKinley and to see if there is anything else underlying her HAE. No one has ever been allergic or had the reactions to the HAE meds like Liz. As he stated, she is Unique.

One thing that surprised us was one of Liz's and I friends did a Gofundme page for Liz. Here is the Link:

Liz's Gofund Page

*If you find it in your heart to Donate, you can remain anonymous* We thank you in advance.

Thank you again Jason for all that you do for us, by listening, talking and playing with McKinley when you come over. Your friendship means the world to us.

So we do not know what is Next. No one does. We can plan and make schedules, but as we all know, Life gets in the way and directs us to areas that we did not know we needed and had to go.

We hope you are well and that you are all healthy and happy.

J,L, and M. Marshall